Disability Issues @ MDRC - The Maori Development Research Centre

Maori Development Research Centre 102 Brookfield St, PO Box 4467, Hamilton East, New Zealand Phone / Fax +64 7 858 2047 Email info@mdrc.co.nz

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Whanau Living With Disability

Disability Issues

This section includes profiles of staff working in this area and relevant staff publications. Related information available on this website are: Maori Disability Support Services Projects A Kaupapa Whanau of Maori with disabilities, carers, kaumatua and support people: a feasibility study (2008-2009) Funded by the Health Research Council Research Team: Adelaide Collins, Huhana Hickey, Nancy Higgins (Donald Beasley Institute), Druis Barrett (Aotearoa Maori Carers Network), Hazel Phillips (Victoria University of Wellington), Benita Wakefield (Maiora Wekepiri Ltd), Aaron Harman and Heather Oulton Building on previous work, this project aims to gather together as many interested people as possible to discuss whether to establish a kaupapa whanau. More information can be found at http://www.mdrc.co.nz/info_page.php?info_id=104 Research Priorities for Maori with disabilities and their whanau (2008-2009) Funded by the Ministry of Health and Health Research Council Research Team: Adelaide Collins, Huhana Hickey, Nancy Higgins (Donald Beasley Institute), Druis Barrett (Aotearoa Maori Carers Network), Hazel Phillips (Victoria University of Wellington), Benita Wakefield (Maiora Wekepiri Ltd), Aaron Harman and Heather Oulton This project runs alongside the kaupapa whanau project as the first issue to be placed before them. The aim is to influence the directions of the strategies and action plans of the Ministry of Health and Health Research Council. Working in Residential Intellectual Disability Services: Staff Retention and Turnover (2008-2010) Funded by the Health Research Council Research Team: The Donald Beasley Institute (Nancy Higgins, Brigit Mirfin-Veitch, Paul Milner, Sue Gates, Teresa Evans-Turner) and MDRC (Adelaide Collins) Residential services for people with intellectual disabilities usually have a high turnover of frontline support staff, and this negatively affects the quality of life of people with intellectual disabilities. Support staff often experience high stress; inadequate recognition, support, and training, and burnout. However, staff characteristics, coping strategies, training, professional supervision, reward systems, and positive aspects of the work may help to retain experienced and qualified staff. This study will identify the general demographics and turnover levels of the workforce, the perceived workplace issues, and the factors affecting job satisfaction, stress and burnout. Maori and Informal Caregiving: A Background Paper (2006-2007) Funded by the National Health Committee Researcher: Adelaide Collins and Greg Willson Informal caregiving is a priority area of research for the National Health Committee since so little is known about the subject. The paper can be downloaded from their website at http://www.nhc.health.govt.nz/moh.nsf/indexcm/nhc-maori-informal-caregiving?Open Building a national network of Maori with disabilities, their whanau and disability support service providers: a scoping study (2005) Funded by the Health Research Council Researcher: Adelaide Collins We hoped to establish a national network as a voice to address disability issues for Maori. We hope the network will help to advance social, cultural and professional opportunities for Maori with disabilities. We also hope that the network will carry out collaborative research projects to develop intervention strategies that - facilitate positive relationships between Maori with disabilities and their support systems - help inform national policy development, and - facilitate increased uptake of disability support services by Maori with disabilities The Role of Whanau in the Lives of Maori with Disabilities (2004-2005) Funded by the Families Commission Researchers: Adelaide Collins and Huhana Hickey Research concluded that the whanau is a secondary social and economic unit in the lives of Maori with disabilities. This is a significant departure from the commonly held belief that whanau is the primary unit for Maori and may reflect a previously invisible distinction for Maori with disabilities within a broader cultural context. We are keen to explore this possibility further. The project explored the factors that help and hinder the wellbeing of whanau when a member has a disability and the part that whanau play in supporting their member with a disability. The report can be downloaded from the Families Commission website at http://www.familiescommission.govt.nz/research/blueskies-2005.php

Adelaide Collins, Director

Adelaide Collins (Ngati Mahanga, Te Aitanga-a-Mahaki) Director Phone 07 858 2047 Email collins@mdrc.co.nz Adelaide is a Social Science Researcher in Maori Development and NZ Cultural History. Her research interests are disability issues for Maori, research...

Huhana Hickey, Research Associate

Huhana Hickey (Ngati Tahinga) Research Associate Email hickey@mdrc.co.nz Huhana is a Solicitor and Consultant on human rights and disability issues. She is a Legal Advocate at Auckland Disability Law and Kaimahi with Te Roopu Waiora Trust. Her research interests are...

Maori and Informal Caregiving

Collins, A., & Willson, G. (2008). Maori and informal caregiving: A background paper prepared for the national health committee. Wellington: National Health Committee. The paper can be downloaded from the NHC website

Whanau and Maori with Disabilities

Collins, A. & Hickey, H. (2006). The Role of Whanau in the Lives of Maori with Physical Disabilities. Wellington: Families Commission. Retrieved from http://www.familiescommission.govt.nz/research/blueskies-2005.php Recently published research concluded that the whanau is a secondary social...

Representation for Indigenous People with Disabilities

Hickey, H. (2005). Indigenous people with disabilities: The argument for representation in human rights legislation (with specific reference to the development stage of the united nations international disability convention). He Puna Korero Journal of Maori and Pacific Development., 6(2),...

Abuse, Identity and Disability

Hickey, H. (2005). Validating Ourselves in an Environment of Abuse and Exclusion - an indigenous persons perspective of abuse, identity and disability. Paper presented at the Many Faces of Abuse: A conference to address the presence, nature and impact of abuse in care settings. Auckland: Standards...

Disability Support for Maori

CITATION Nikora, L., Karapu, R., Hickey, H., & Te Awekotuku, N. (2004). Disabled Maori and Disability Support Options. A Report Prepared for the Ministry of Health. Hamilton: Maori & Psychology Research Unit. For more information click here.

Hunga Haua Identity

CITATION Hickey, H. (2004). A Taonga Is A Taonga In Any Language. Women’s International Leadership Institute, Tuczon, Arizona. Available from http://www.wili.org/docs/A_Taonga_is_a_Taonga_in_Any_Language.pdf

Waikato Employment Strategy for People with Disabilities

CITATION Hickey, H. (2002). Analysis of Government Agency Stocktake. In Intersect Waikato, Focusing on Abilities not Disabilities: The Waikato Whole of Government Approach to an Employment Strategy for People with Disabilities (pp. 1-24). Hamilton: Intersect Waikato.

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